Marriage Equality in Michigan!

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For those who may not have noticed, I am quite a bleeding-heart liberal.  Contrary to what my conservative friends believe, I come by these liberal leanings because of my deep Christian faith.  I am continually surprised at the attitudes of my more fundamentalist friends.  I cannot believe that we take such differing views by reading the same scriptures.

Quite simply, my faith tells me to love my God and to love all people.  It’s just that simple.  Love all people.  Care for all people, especially those who are marginalized by society.  That’s it.

My home state has taken a drastically conservative turn and has given me little to be proud of lately.  Michigan is the home of More

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Happy Pi Day Everyone!

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One of the joys of having a son who is a mathematician is that I know what Pi Day is and can actually recite many digits of Pi.  I do not need or desire to have this information in my head, but there it is!!  My son wished me happy Pi Day today.

So here is my post…no rape, no abuse, no trauma.

Just pie!

Go forth and eat some pie in honor of my brilliant mathematical child 🙂

Exposure

It was a stunning day today.  Spring finally looked as if it might someday appear.  It was 54 degrees today!  54!!!!  That is a number that was unfathomable just a week ago.  The sun was shining.  The children at school were able to actually go outside for recess and run amok for a few glorious minutes.  I was able to venture into the great outdoors without gloves for the first time in months.  I had a good day at work and was ready for a nice calming evening.

I was not ready for another sneak attack of PTSD, right at the end of the work day.  More

I Love Someone Who’s Rare :)

Here it is, after midnight again.  I often find myself writing at this time of night.  Who knows why?

This fact makes me officially a day late for this post, but I truly wanted to share.  Friday was World Rare Disease Day.  I have two dear friends who “celebrate” this day.  One is an adult with a disease called TTP that has almost taken her life and left her with lifelong symptoms.  Another is a friend whose beautiful daughter has Joubert Syndrome, a very rare genetic disorder.  I believe something like 600 people in the world have it.

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These rare diseases do not get the huge media attention that other diseases get…breast cancer, heart disease, diabetes, leukemia.  There are no huge donations going to fund research for them because they affect so few people.  This means that the chances of finding a cure are much smaller for these rare diseases.  But the people who have them are just as deserving as those with more highly publicized disorders.

The Global Genes Project unifies these diseases into one entity and helps promote awareness for all of them.  Their symbol is a blue denim “genes” ribbon, because so many of these diseases are genetically based.  I’m wearing mine 🙂  According to their website:

“While individual rare diseases have small patient populations, collectively the rare disease community is larger than the AIDS and Cancer communities combined.  Despite its size, the community lacks of a unified voice, as only 15% of  rare diseases have organizations or foundations providing support or driving research.

It is estimated that 95% of all rare diseases do not have a single FDA approved drug treatment, and there are currently less than 400 treatments approved by the FDA  for the nearly 7000 rare diseases which have been identified. According to estimates from the NIH, it will take 10,000 years at the current rate of FDA drug approvals to find therapies for all people suffering from rare and genetic diseases.”

It is a worthy organization that brings funding and advocates for these special people and gives them hope of finding a cure–in less than 10,000 years.  I hope you will take a moment to look into it.

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